From Saturday 13th to Monday 22nd December 2008, 1st Class Motorcycle Training Instructors had
taken their festive spirits to a whole new level, they took on the task of wearing Santa suits whilst
carrying out their training duties to help raise much needed funds for the DebRA charity...
To make an Online Donation
For more information on DebRA
DebRA is the national charity working on behalf of people in the UK with the genetic skin blistering condition Epidermolysis Bullosa (EB).
Epidermolysis Bullosa (EB) is a very rare genetic condition in which the
skin and internal body linings blister at the slightest knock or rub, causing
painful, open wounds.
EB is likely to affect 1 in 17,000 live births and it is estimated that there
are currently 5,000 people with the condition in the UK. Because EB is an
inherited condition (it cannot be caught), which is passed on genetically
from parents to children, first time parents often do not know that they
are carriers and will have no prior warning that the child will be affected,
until birth.
The condition has a number of distinct forms. At its mildest, the blistering is confined to the hands and feet making holding things and walking extremely painful. In more severe forms all the body is affected and the wounds heal very slowly, giving rise to scarring, physical deformity and significant disability.
For many affected by the condition, the blistering is not limited to the skin but also affects the inner body linings such as the mouth and oesophagus. The eating of solids is, in these cases, almost impossible, and the disposal of the body waste incredibly painful. When this condition applies, malnutrition is often a consequence, further reducing the body’s resistance to infection.
People with the more severe types of EB also have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy.
Whilst considerable progress has been made in recent years in understanding EB and identifying the genes that cause the condition, there is as yet no effective treatment or a cure.
Lucy meets the 1st Class Santa's
Lucy didn't realise Santa had been cloned!
Lucy receives a gift from Santa
Ho Ho Ho !!!
1st Class Training from Santa !!!
1st Class Motorcycle Training would like to thank everybody involved for their hard work and effort in helping to organise this special charity event. We would like to wish DebRA every success in achieving their goals.
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Registered under Companies Act England & Wales. Registered No. 5024495. Registered office : Second Floor, 1 Addison Road, Plymouth. PL4 8LL
